Further Information

You will find below a selection of links to websites which we believe can provide useful further information to that which we provide on this site.

ADHD

• ADDISS (National Attention Deficit Disorder Information and Support Service)
• ADHD UK Alliance
• YADHDPM (Young ADD & ADHD People Matter)
• ADHD Arena

Agenesis of the Corpus Callosum

• Corpal - Supporting those with ACC
• National Institute of Neurological Disorders

Angelman Syndrome

• Contact a Family - Angelman Syndrome
• Angleman Syndrome Support Education and Research Trust
• Genetics Home Reference - Angelman Syndrome

Anxiety Disorders

• Anxiety UK
• Rethink
• Keep Kids Healthy
• Kids Behaviour

Aphasia

• Aphasia Now
• Aphasia Help
• The Tavistock Trust for Aphasia
• Speak Ability-The National Charity for People with Aphasia

Applied Behavioural Analysis (See Lovaas)

Asperger's Syndrome/Autism

• The National Autistic Society
• Public Autism Awareness
• Autism Independent UK
• About Autism (A Parent's Perspective)
• Autism Awareness
• Autism Speaks
• Peach (Parents for the Early Intervention of Autism)
• Autism Unravelled
• Autism Initiatives
• Autism Networks
• Autism Care UK
• Information about Autism
• Autism Info Site
• Autism Medical (Allergy Induced Autism)
• Autism Resources
• Autism World
• Son Rise Programme
• Autism Issues
• Autism Treatment Centre
• Families for Early Autism Treatment
• Research Autism
• The Autism Research Institute
• Resources for Autism
• Action for Autistic Spectrum Disorder
• Asperger and Autistic Spectrum Disorder Forum
• Asperger's Syndrome Foundation
• Asperger's Network
• Asperger's Information and Support
• Autism Europe
• Hoffmann Foundation for Autism
• Autism Services Directory
• PECS
• TEACCH

Auditory Processing Disorder

• Auditory Processing Disorder in the UK
• Digital Auditory Aerobics (Auditory Integration Therapy)

Brittle Bone Disease/Osteogenesis Imperfecta (OI)

• Osteogenesis Imperfecta Foundation
• Brittle Bone Society

Cerebellar Ataxia

• Ataxia UK

Cerebral Palsy

• Cerebral Palsy Sport
• Scope (The Disability Organisation for People with Cerebral Palsy)
• ICPS (The International Cerebral Palsy Society)
• Cerebral Palsy Plus
• BIRD (Brain Injury Rehabilitation and Development)

Cognitive Behaviour Therapy

• The Royal College of Psychiatrists
• NHS: Cognitive Behaviour Therapy
• Cognitive Behaviour Therapy

Conduct Disorder

• Kids Behaviour
• Contact a Family: Conduct Disorder
• NHS Mental Health Specialist Library: Conduct Disorder (pdf)

Conductive Education

• The Foundation for Conductive Education
• Conductive Education
• Conductive Education Support Service

Crohn's Disease

• NACC (National Association of Colitis and Crohn's Disease)
• IBD club (For people suffering from Inflammatory Bowel Disease.)
• Children with Crohn's and Colitis
• European Federation of Crohn’s and Ulcerative Colitis Association
• Crohn's Zone

Cystic Fibrosis

• Cystic Fibrosis Trust
• Cystic Fibrosis Database
• Genetic Interest Group
• Caring for Cystic Fibrosis

Developmental Delay

• British Institute for Brain Injured Children

Diabetes

• Diabetes UK
• Global Diabetes Community
• British Heart Foundation: Diabetes
• Juvenile Diabetes Research Foundation

Down's Syndrome

• Down's Syndrome Association
• National Down Syndrome Society
• National Association for DS
• Down's Syndrome - A Parents Resource
• Down's Syndrome for New Parents
• Down's Syndrome Connection

Dysarthria

• Speech Disorder (UK)
• Dysarthria in Multiple Sclerosis

Dyscalculia

• What is Dyscalculia?
• National Centre for Learning Disabilities
• The Dyscalculia Centre
• The Dyscalculia Forum
• Achieve Ability

Dysgraphia

• National Centre for Learning Disabilities

Dyslexia / Specific Learning Difficulty (SpLD)

• British Dyslexia Association
• The International Dyslexia Association
• Dyslexia Action
• Dyslexia UK
• Dyslexia Help
• Dyslexia Teacher
• Achieve Ability
• Being Dyslexic
• Adult Dyslexia Organisation

Dysnomia (See Aphasia)

Dyspraxia

• Dyspraxia Foundation
• Achieve Ability

Early Intervention

• Early Intervention Feasibility Study

Educational Psychologists

• The British Psychological Society
• Association of Educational Psychologists

Emotional & Behavioural Difficulties (EBD)

• Behaviour for Learning

Echolalia

• Semantic Pragmatic Disorder Support Group
• National Autistic Society

Emotional Literacy

• The School of Emotional Literacy
• National Literacy Trust

Epilepsy

• Brainwave
• National Society for Epilepsy
• National Centre for Young People with Epilepsy

Facilitated Communication

• Facilitated Communication Institute

Fragile X Syndrome

• The Fragile X Society

Graphomotor Skills

• The Centre for Development and Learning

Guillain Barre (GB)

• Guillain Barre Syndrome Support Group

Hearing impairment (HI)

• High Hopes
• Deaf Club
• Deaf Plus
• Deaf/Blind UK
• Hearing Concern
• Royal National Institute for Deaf People (RNID)
• Deafness Research
• Deaf Broadcasting Council
• Hearing Dogs for Deaf People
• Jewish Deaf Association
• The Link Centre for Deafened People
• National Deaf Children's Society
• Royal Association for Deaf People
• Deaf Council
• SignHealth – The Healthcare Charity for Deaf People
• Sign Community
• Action Deafness
• Open Ears

Heller’s Syndrome

• Research Autism

Hydrocephalus

• Hydrocephalus Association

Hyperlexia

• Hyperlexia.com

Hypotonia

• Contact a Family: Hypotonia
• Living with Cerebral Palsy: Hypotonia

Irlen Syndrome/Scotopic Sensitivity

• Irlen
• Irlen Central England
• Irlen Syndrome UK

Landau Kleffner Syndrome

• Friends of Landau Kleffner Syndrome
• Epilepsy Action

Learning Disabilities

• Learning Disabilities Online
• Foundation for People with Learning Disabilities
• British Institute of Learning Disabilities
• MENCAP
• Learning Disability Web Site
• Learning Disabilities UK
• Learning Disability Coalition
• United Response
• National Forum for People with Learning Difficulties
• Disabilities-trust
• Elizabeth Efitzroy Support for People with Learning Disabilities
• L'Arche

Lovaas

• The Lovaas Institute

Makaton

• The Makaton Charity
• Signed Language (UK)
• Royal Association for Deaf People - Makaton Workshops
• Singing Hands

Moderate Learning Difficulties (MLD) (see Learning Disabilities)

Mood Disorder

• National Mental Health Information Centre (US)
• Ivillage Total Health: Mood Disorder

Mowat-Wilson Syndrome

• Mowat-Wilson Syndrome Support Group

Multi-Sensory Impairment (MSI)

• SENSE (for Deaf/Blind people)
• The Learning Place
• A-Z of Deaf Blindness
• Deaf/Blind UK
• Deaf Blind Web Resource
• National Family Association for Deaf-Blind
• Deaf/Blind International
• Deaf/Blind Online

Muscular Dystrophy

• Muscular Dystrophy Campaign

Music Therapy

• British Society for Music Therapy
• The Music Therapy Charity
• The Association of Professional Music Therapists
• Music as Therapy
• Making Music
• World Federation for Music Therapy

National Curriculum

• National Curriculum
• Understanding the National Curriculum

Neurofibromatosis

• The Neurofibromatosis Association
• The Children's Tumor Foundation

Noonan Syndrome

• The Noonan Syndrome Support Group

Non-Verbal Learning Difficulties (NLD)

• Dyslexia A 2 Z
• Specific Learning Difficulties Matters
• SNAP - Special Needs Assessment Profile

Obsessive Compulsive Disorder (OCD)

• OCD UK
• OCD Action

Occupational Therapy (OT)

• British College of Occupational Therapists
• OT Direct
• World Federation of Occupational Therapists

Oppositional Defiant Disorder (ODD) (See ADHD)

• Kids Behaviour

Orton-Gillingham

• Orton-Gillingham-Institute for Multi Sensory Learning

Parent Partnerships

• National Parent Partnership Network

PECS

• Pyramid Educational Consultant

Pathological Demand Avoidance (PDA)

• PDA Contact Group
• National Autistic Society, PDA
• Contact a Family, PDA

Pervasive Developmental Disorder (PDD) (See Asperger's Syndrome/Autism)

Physical Disability (PD)

• RADAR (The Disability Network)
• Disabled Living Foundation
• Disabled Go
• You're Able
• Disability Now
• Talking Point
• Ouch-Disability Magazine
• Aspire (supporting people with spinal injury)
• Disabilities-trust
• Disability Partnership
• Orpheus
• Parity for disability
• Steps-Charity
• Treloar
• UK Disabled People's Council

Physiotherapy

• The Chartered Society of Physiotherapy
• Physiotherapy Resources
• Physio Directory

Play Therapy

• Play Therapy UK
• The British Association of Play Therapists

PMLD

• PMLD Network Forum
• PMLD Link

Prader-Willi Syndrome

• Prader-Willi Syndrome Association

Rett Syndrome

• Rett Syndrome Association
• Epilepsy Action

Scoliosis

• iScoliosis
• Scoliosis Association UK

Selective Mutism

• Kids Behaviour - Selective Mutism
• Selective Mutism Information & Research Association
• Selective Mutism Group - Childhood Anxiety Network

Semantic Pragmatic Disorder

• National Autistic Society: Semantic Pragmatic Disorder
• Semantic Pragmatic Disorder Support
• Speech and Language: Semantic Pragmatic Disorder

SEN Inclusion

• Inclusion (Supporting Individual Learning Needs)
• Parents for Inclusion

Sensory Integration Disorder (SID)

• Signs, Symptoms and Background Information
• Sensory Processing Disorder Center
• Sensory Integration Network

Severe Learning Difficulties (SLD) (See Learning Disabilities)

Sickle Cell Anaemia

• Sickle Cell Society
• Sickle Cell Information

Son-Rise Programme

• Autism Treatment Centre of America

Speech and Language Disorder

• Afasic (Unlocking Speech and Language)
• British Stammering Association
• ARCOS (Association for Rehabilitation of Communication and Oral Skills)
• I-CAN (Helps Children Communicate)
• Royal College of Speech and Language Therapy
  

Speech and Language Therapy

• Royal College of Speech and Language Therapists
• Association of Speech and Language Therapists in Independent Practice

Spina Bifida

• Association for Spina Bifida and Hydrocephalus
• Kids Health: Spina Bifida

Statement of SEN

• Directgov

Tactile Defensiveness

• Dyspraxia Foundation - Tactile Defensiveness Download

TEACCH

• TEACCH website

Tourette's Syndrome

• Tourette Syndrome UK Association

Ulcerative Colitis

• Colitis UK
• NACC (National Association of Colitis and Crohn's Disease)
• IBD club (For people suffering from Inflammatory Bowel Disease.)
• Children with Crohn's and Colitis
• European Federation of Crohn’s and Ulcerative Colitis Association
• Crohn's zone

Visual Impairment

• RNIB (Supporting Blind and Partially Sighted People)
• Football Association for the Visually Impaired
• Royal London Society for the Blind
• Action for Blind People
• British Computer Association for the Blind
• National Blind Children's Society
• The National Federation of the Blind UK
• See Ability
• Lighthouse International
• Visual Impairment North East
• Blind Care
• British Council for the Prevention of Blindness
• Greater London Fund for the Blind
• Henshaws Society for Blind People
• Torch Trust for the Blind
• Vista Blind
• Internal Glaucoma Association
• National Library for the Blind
• Talking Newspaper Association UK
• British Wireless for the Blind Fund
• The Guide Dogs for the Blind Association

Waardenburg Syndrome

• Contact a Family - Waardenburg Syndrome

Warnock & SEN

• The Warnock Report on SEN
• Hansard

Williams Syndrome

• The Williams Syndrome Association
• The Williams Syndrome Foundation

Worster-Drought Syndrome

• Worster-Drought Syndrome Support Group

Below are some links which may be interesting to all parents:

• IPSEA (Independent Panel for Special Educational Advice)
• NAS (National Autistic Society)
• ACE (Advisory Centre for Education)
• OAASIS (Office for Advice, Assistance, Support and Information on Special Needs)
• Afasic
• DCSF
• Teachernet
• Teachers TV
• SENDIST
• Network 81
• Nasen
• Scope
• Down's Syndrome Association
• Education Otherwise
• Parents Centre
• Making Contact
• Contact a Family
• Special Child
• AMAZE
• Special Kids in the UK
• SNAP Cymru (offers information and support to families of children and young people who have special educational needs)
• NASEN (National Association for Special Educational Needs)
• Talking Point
• Special Needs Jungle
• TES

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